Seizure and Epidiolex (Late post from yesterday)

Mason had a 10 minute seizure today. Unfortunately he seems to be having an increase in seizures this month and we are not sure why. He is currently taking Epidiolex to control his seizures. Epidiolex is a form of CBD oil that is FDA approved. He started it in March and we did see a slight decrease in seizures at first. But he has had a recent unexplained increase. One downfall to the Epidiolex is that is seems to be elevating his liver enzymes. It is always a balancing game with his medications. I’m still hopeful that Epidiolex may work for him to manage his seizures. Although some doctors believe that Mason will never be seizure free, we feel this is a step closer to a larger reduction in seizures.

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